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Simon

#auguts hard to talk about

Life is full of surprises. Life is not a return to normal. Life is not full of us who can apparently easily deal with a stoma.

Life is full of surprises. Life is not a return to normal. Life is not full of us who can apparently easily deal with a stoma. Good for people who can but let’s get realistic. The whole business can be messy, degrading, and at least partly limiting. Less than two years ago I had to have a permanent stoma. I named it after a colleague who was full of crap but once did me a massive favour. Loud farting was the first of many embarrassing events but not so funny are the occasional accidents – which shouldn’t happen but are common with having to wear a hernia belt. These aren’t funny especially if they happen somewhere difficult or at work. Cleaning up is usually not a problem but the smell and leakage are. Some foods and drinks are to be avoided – anything fizzy remains as such. Holidays are good – though insurance is difficult – and lacking in confidence means I wear special high waisted swimming trunks.

So in short I still struggle at times with my stoma but 18 months of experience has helped. If only it wasn’t for the damned hernia, the massive plastic surgery on my bum and a cancer spread to my lung all would be perfect.

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#auguts stories, tips and recipes

Gut health is unique to you, so hear from experts, people with lived experience and the community to find out ways they manage their gut health. Scientists believe that, from birth, the gut microbiome is linked to virtually every aspect of our health. There is still much more to discover but take your first step here.

Michael

I am 71 years old. Diagnosed with Stage 3 rectal adenoma in March 2022. I had chemoradiotherapy and Contact Radiotherapy (Papillon treatment) as due to a rare neurological disorder, which compromises my daily living activities, I did not feel I would cope well with the proposed surgery and permanent stoma.

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Gillian

I had been ignoring an intermittent pain/ache in my left-hand side for over a year. The pain became more permanent and I started to notice my bowel habits change. I was a one time a day in the morning regular as clockwork for all my life. It then went up to 3 times and urgent and painful.

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Angela

My bowel stopped working due to diverticulitis which caused a stricture. My caecum ballooned and this was removed together with 2/3 rds of the colon & a colostomy bag attached for 6 months. This was reversed after 6 months at St Thomas’s Hospital 6 years ago.

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